U.S. Rep. John James 10th District of Michigan | Official U.S. House headshot
U.S. Rep. John James 10th District of Michigan | Official U.S. House headshot
In recognition of Rare Disease Month, Representative John James has introduced the Sickle Cell Disease Research Reauthorization Act. The legislation is co-led by Representatives Jen Kiggans, Troy A. Carter Sr., Danny Davis, and Marc Veasey. Senators Tim Scott and Cory Booker are leading a similar bill in the Senate.
Sickle cell disease (SCD) primarily affects African Americans, Latinos, and other minority groups. It is a blood disorder that significantly reduces life expectancy. According to the Centers for Disease Control and Prevention, about 100,000 individuals in the United States live with sickle cell disease. The new bill seeks to reauthorize the Sickle Cell Disease Treatment Demonstration Program last renewed in 2018. This program provides funding for research into prevention and treatment.
Rep. James stated, “Sickle cell disease research is critical to treatment and prevention... This bill cuts through the noise, driving research—like game-changing gene therapies—and better data to empower families with real solutions."
Congresswoman Jen Kiggans emphasized her support by stating: “As a healthcare provider, I am proud to join my colleagues in introducing legislation... Reauthorizing this program is essential to ensuring these patients continue to have access to quality care.”
Representative Veasey highlighted past efforts: “For the past seven years, we have worked tirelessly... Reauthorizing the Sickle Cell Disease Treatment Demonstration Program builds on the progress we’ve made.”
Congressman Troy A. Carter Sr. noted his commitment as an original cosponsor: “I’m proud to be an original cosponsor of this bill... It’s past time that we prioritize the health and well-being of those impacted by sickle cell disease.”
Rep. Davis shared personal insights: “I have watched loved ones and neighbors suffer from sickle cell disease... This bipartisan legislation will help American SCD warriors access quality care while improving research.”
Senator Scott expressed his support for continued innovation: "Reauthorizing this program will allow us to expand access to research and treatment for rare blood diseases..."
The proposed legislation aims at continuing advancements in treating sickle cell disease while providing necessary resources for those affected.
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